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Posts tagged ‘Genetic Alliance UK’

Data sharing: a patient perspective

Genomic data from patients is a rich source of information for research into how our genes affect our health and here at the MRC we are keen to harness its power as part of our vision for informatics research. But what do patients think about their genomic data being shared for research? Here Alice Hazelton, Public Engagement Officer for Genetic Alliance UK, writes about the charity’s efforts to find out.

Families from SWAN UK tour the Wellcome Trust Sanger Institute

Families from SWAN UK tour the Wellcome Trust Sanger Institute (Image copyright: Genetic Alliance UK/Joshua Tucker)

 

Genomic information has the potential to transform healthcare. Researchers are continually learning more about the genome and the genetic basis of disease and as the cost of genome sequencing technologies and analytics tools fall, more and more research will become possible.

This will help us to achieve a greater understanding of how our genes affect our health and develop new diagnostic tools, screening methods and treatments for some conditions. The sharing of patient data will play a crucial role in this. Read more