Patient data has the power to revolutionise our approach to medical research and help improve human health. We’re funding scientists to use big data to tackle some of the biggest health challenges, including neurodegeneration. Here Ed Pinches, from Alzheimer’s Research UK, tells us why access to large data sets is so important in our fight against dementia.
It’s the hot topic, the subject dominating much of the latest news. Data. Your data. How it is used, how it is stored, who gets to access it, and for what purpose?
As a runner-up in our 2017 Max Perutz Science Writing Award, PhD student Sophie Quick, of the MRC Centre for Regenerative Medicine at the University of Edinburgh, explains why her research – focused on a condition called small vessel disease which can cause dementia – matters.
Strawberry picking might not seem like the place for scientific inspiration, but on a warm summers day just weeks into my PhD, I returned not just with a punnet of Scotland’s finest fruits but a new take on my research. Sheltered by a gently flapping plastic roof I bent to pluck a handful of ripe berries, spotted fine tubes running along the soil and was struck by an idea.
In her runner-up article for our 2017 Max Perutz Science Writing Award Nadine Mirza, a PhD student at the University of Manchester, explains why changes are needed to a routine test for diagnosing dementia, unbiased by language or culture, to prevent incorrect diagnoses.
Have you heard the saying “No ifs ands or buts”? Associated with grannies and teachers, you’d be hard pressed to find someone who hasn’t. It’s also a saying used in the ACE, a test implemented across the UK to detect dementia. An individual has to read the saying out loud with correct pronunciation. When directly translated into Urdu it loses meaning and becomes gibberish and reading out gibberish isn’t a smooth task. Even a fluent Urdu speaker might fail. But would we attribute that to dementia? Apparently, yes.