By backing the AllTrials campaign we commit to making all clinical research – both positive and negative – publicly available. We’ve taken the lead in the UK by helping our researchers achieve this goal. But there’s still more funders can do, as Síle Lane, Head of international campaigns and policy at Sense about Science, explains.
The MRC was one of the first organisations to sign up to the AllTrials campaign which is now supported by almost 800 organisations worldwide. AllTrials is the global campaign for all clinical trials to be registered and results reported.
With backing from organisations like the MRC we have been able to put clinical trial transparency on agendas at the highest levels including the World Health Organisation, the UN, national governments and the European Parliament. New laws mandating transparency have been written and serious discussions have started in research organisations and professional societies about new rules they should adopt to support more transparency.
Professor Janet Darbyshire worked in medicine and then clinical trial based research from the early 1970s. Playing an instrumental role in the development of HIV treatment, she’s worked on and coordinated many clinical trial programmes in the UK and Africa. Last month we celebrated her achievements at a ceremony held within the Houses of Parliament, awarding Janet our most prestigious award, the MRC Millennium Medal. Here Janet tells us about her early memories of medicine, giraffes in Africa and the changes she’s seen her research make to people’s lives.
Career in brief
- Qualified in medicine at The University of Manchester in 1970
- MSc in Epidemiology from the London School of Hygiene and Tropical Medicine 1990
- Became head of the MRC HIV Clinical Trials Centre in London in 1989
- In 1998 established, and became director of, the MRC Clinical Trials Unit (CTU)
- Awarded an OBE in 1996 and a CBE in 2010 for services to clinical sciences
For our final post in the ‘To the Crick’ series, we hear from Luiz Pedro Carvalho. He’s moving from the site of what was the National Institute of Medical Research (NIMR) in Mill Hill to the new Francis Crick Institute building in King’s Cross. We find out about Luiz’s work, focused on tuberculosis (TB), and look back at over 100 years of MRC-funded TB research.
Open-plan lab spaces inside the Crick
“It’s a mixture of excitement and already missing the place,” says Luiz. Mill Hill was home to NIMR for most of its lifetime but activities there have nearly come to an end. The venerable institute is now part of the Francis Crick Institute.