The EU General Data Protection Regulation (GDPR) and new Data Protection Act come into force on 25 May. Both apply in the UK and will influence research involving personal data. So what’s changing and how should you, as a researcher, prepare? Sarah Dickson, Head of the MRC Regulatory Support Centre, is here to help.
What is GDPR?
The EU General Data Protection Regulation (GDPR), along with the new UK Data Protection Act, will govern the processing (holding or using) of personal data in the UK.
Although the new regulations haven’t been designed specifically for research, we’ll need to make some changes to research practice. The Information Commissioner’s Office (ICO) is the UK regulator. The Health Research Authority (HRA), in collaboration, is providing official guidance for people working in health and social care research. We‘re working with both organisations.
For MRC grants that involve collaborations, almost half (43%) are international. We’re running a symposium in Washington D.C to encourage more of this, by joining up UK early career researchers and National Institutes of Health (NIH) researchers working in neurodegeneration. But what’s the international incentive? Three researchers with MRC-NIH Partnership Awards share how they hope to benefit.
Dr Chi-Hun Kim, Dementias Platform UK, University of Oxford
Dr Chi-Hun Kim
The UK and US each have rich data sources for dementia research. But there aren’t any efficient UK-US data access channels which make it easier for researchers in the two countries to collaborate.
I plan to use the Dementias Platform UK (DPUK) Data Portal as a channel for more efficient and long-standing collaboration. The portal is a secure one-stop website where researchers can upload their data and analyse it for free. By using this robust MRC-funded facility, I’ll conduct a study using data from both sides of the Atlantic. I’m aiming to get a better picture of how conditions that block or reduce blood flow to the brain might affect the development of dementia.
DPUK and I have been helping South Korea make a similar facility to help with international collaboration. My experiences from the MRC-Korea collaboration will set me up well for this exciting new collaboration.