By backing the AllTrials campaign we commit to making all clinical research – both positive and negative – publicly available. We’ve taken the lead in the UK by helping our researchers achieve this goal. But there’s still more funders can do, as Síle Lane, Head of international campaigns and policy at Sense about Science, explains.
The MRC was one of the first organisations to sign up to the AllTrials campaign which is now supported by almost 800 organisations worldwide. AllTrials is the global campaign for all clinical trials to be registered and results reported.
With backing from organisations like the MRC we have been able to put clinical trial transparency on agendas at the highest levels including the World Health Organisation, the UN, national governments and the European Parliament. New laws mandating transparency have been written and serious discussions have started in research organisations and professional societies about new rules they should adopt to support more transparency.
Academic conferences present researchers with a fantastic opportunity to share their work, gain feedback, and spark new collaborations. But to attend most conferences you must submit an abstract of completed work, months in advance. What if you’re just getting started? Roni Tibon, together with Rik Henson and other members of the MRC CBU Open Science Committee, raised the issue in a recent article published in Trends in Cognitive Sciences. Here Roni guides us through the problem, and what they see as the solution.
A call for abstract submissions opens for a great conference in July. The deadline is early January. Many of your colleagues are going and it’ll be a wonderful opportunity to get input on your work and learn about other peoples’ research.
But as you check the submission guidelines, you realise that the conference organisers ask for abstracts to include results and conclusions, and you can’t provide any conclusions. Maybe you’re still collecting data, considering your design or haven’t started running your experiment yet. Read more
Eilean MacDonald was diagnosed with childhood arthritis when she was only a baby. 18 years on, as well as dealing with normal teenage life and managing her condition, she’s helping MRC researchers on a stratified medicine study to pick the right treatment, first time, for future patients.
It all started when I was 18 months old and I bumped my knee. My parents noticed that the swelling wouldn’t go down, and took me to our local hospital. They ran tests but the doctors couldn’t figure out what was wrong, so I was referred to the rheumatology department at Alder Hey children’s hospital, where I was diagnosed with Juvenile Idiopathic Arthritis (JIA). Read more