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GDPR: What researchers need to know

The EU General Data Protection Regulation (GDPR) and new Data Protection Act come into force on 25 May. Both apply in the UK and will influence research involving personal data. So what’s changing and how should you, as a researcher, prepare? Sarah Dickson, Head of the MRC Regulatory Support Centre, is here to help.

What is GDPR?

The EU General Data Protection Regulation (GDPR), along with the new UK Data Protection Act, will govern the processing (holding or using) of personal data in the UK.

Although the new regulations haven’t been designed specifically for research, we’ll need to make some changes to research practice. The Information Commissioner’s Office (ICO) is the UK regulator. The Health Research Authority (HRA), in collaboration, is providing official guidance for people working in health and social care research. We‘re working with both organisations.

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Nutrition research: taking a broader view

The UK Nutrition Research Partnership for health and disease aims to take nutrition research to the next level by building up a strong research base. On the day of the first partnership meeting, Chair Professor Sir Stephen O’Rahilly, Director of the MRC Metabolic Diseases Unit at the University of Cambridge, explains why nutrition matters to you and your research area.

Image credit: University of Cambridge

The food we eat has a huge impact on our bodies. One of the key conclusions of last year’s review of nutrition and human health research in the UK was that we need to gain a deeper insight into how changes in diet affect our health.

We also need more accurate information about how we might better use nutrition to prevent and treat certain important diseases. The UK Nutrition Research Partnership is focused on strengthening the UK science base in basic and translational nutritional research.

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How research can give patients a voice

Eilean MacDonald

Eilean MacDonald was diagnosed with childhood arthritis when she was only a baby. 18 years on, as well as dealing with normal teenage life and managing her condition, she’s helping MRC researchers on a stratified medicine study to pick the right treatment, first time, for future patients.   

It all started when I was 18 months old and I bumped my knee. My parents noticed that the swelling wouldn’t go down, and took me to our local hospital. They ran tests but the doctors couldn’t figure out what was wrong, so I was referred to the rheumatology department at Alder Hey children’s hospital, where I was diagnosed with Juvenile Idiopathic Arthritis (JIA). Read more